Last night, as I sat watching a 9/11 special, I heard an all too familiar sound coming from Caleb's room. Immediately, my heart sunk as I walked in to find him in the midst of a seizure. Having dealt with his Epilepsy for several years now, I have the head knowledge to know what to do for him physically..... place him in a safe space, time it, watch to make sure he can still breathe and not sufficate or choke as vomiting is inevitable.....
But, will I ever not be shaken emotionally?
My heart still isn't used to seeing my precious son's body shaking violently and not being able to stop it. To see his eyes look black and lifeless and know that he isn't "there," and watching him suffer for hours afterwards due to a migraine-like headache.
After each episode, Reagan and I find ourselves hoping and questioning Caleb's future..... Will he be able to drive? Will he be able to function and work to provide for himself? Will he marry? In the past, our hope that he would out-grow this condition and be able to make it without medication would encourage us, but not lately. Our hope is fading for that all-inclusive-no-strings-attached miracle. He may always require medication in order to control this condition.
Today, God spoke to my grieving heart and reassured me that whatever He has planned for Caleb will include his Epilepsy. God designed every detail of my son and this condition did not "slip past" God. He planned this for Caleb. He is not flawed or broken. He is designed by the most loving, caring creator and this condition will not prevent Caleb from experiencing anything God has for him to do or accomplish. This will make him stronger. I think it is making our family stronger. The real miracle here may not be in the healing of this ailment, but in our thriving despite it. There are still many questions, and I cannot answer them at this point. However, I know that God loves Caleb and has his best interest at heart and that is enough to get through today, tomorrow and the numerous days ahead.
So, I praise Him for the adventure that still is to come and for the grace I need today.
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