A Good Report!

This morning, Caleb had a neurologist appointment to discuss his progress.  I anticipated that he would have to do blood work and then we would make plans to follow up in six months.  At that point, we were hoping to begin the process of weaning him off his medication.  To our surprise, Caleb's neurologist is willing to begin the process sooner!  Yay!!  We have an EEG scheduled at the end of May and depending upon the results we will proceed with slowly weaning him off his medication.  Even if the EEG is abnormal, he is willing to let us give it a try since Caleb has gone almost two years without a seizure.

The Positives:

Caleb would finally be able to live a life without worrying about his medication.  It is has been so long since we have lived a life without medication..... making sure we always have it on hand, checking that he has taken it, double checking that he has taken it and factoring it all into our budget.  At one time, Caleb was taking 48+ pills per week.  Life without medication.... wow- just wow.

The Negatives:

Caleb was so excited at first, but the realization that reducing and weaning him off all this medication could very well backfire and throw him back into  a seizure (or seizures) until we could get it controlled again.  So, while he wants to try, he is nervous.  Plus, he doesn't remember a life without having to take all this medicine and he is a little nervous- there is security in his taking it.  During the time of weaning, we will certainly be on alert and making sure that anyone responsible for his care is aware, as the risk may be high for his seizures to return.  It will be hard for me to let him get too far away for fear of one happening and being prepared to deal with that.

Please Pray!

Please pray for us that we will have peace as we proceed and that God will protect Caleb.

Thank you for the love you have expressed to us and all the support you have given.  I have a feeling these next few weeks may be a little tedious for us and your continued support in prayer will be so appreciated!